Content » Vol 95, Issue 8

In This Issue

How to Learn Most About Your Patients

How to Learn Most About Your Patients

Clinical scores such as e.g. PASI and SCORAD have a significant overlap but significant disease-specific differences exist, which mean that one must choose (1). Similarly, no one would accept replacing measurements of haemoglobin with reticulocyte counts, although the two are sometimes related. When collecting data using questionnaires the same stringency should therefore be respected. Questionnaires are extensively validated, but the validation is only relevant when a questionnaire is used according to its purpose.

In this issue of Acta D-V, Professors Finlay, Salek and Piguet (2) therefore remind us about something very important. Although apparently easy to use, questionnaires are similar to other measures. Scientifically speaking, such they may therefore be compared more broadly with other methods in order to triangulate their relative contribution to our understanding of a given problem. If you want to study a specific aspect of a disease using a questionnaire, you should use validated tools suitable to answer the research question at hand (3–6). On the other hand, if you want to explore a given disease in the absence of a specific validated questionnaire one must acknowledge that not all methods will give answers of the same validity – they may however help generate a hypothesis.

Gregor Jemec

Section Editor

References

1. Jemec GB, Wulf HC. The applicability of clinical scoring systems: SCORAD and PASI in psoriasis and atopic dermatitis. Acta Derm Venereol 1997; 77: 392–393.

2. Finlay AY, Salek S, Piguet V. measuring family impact of skin diseases: FDLQIU and FROM-16. Acta Derm Venerol 2015; 95: 1036.

3. Yuen WY, Frew JW, Veerman K, van den Heuvel ER, Murrell DF, Jonkman MF. Health-related quality of life in epidermolysis bullosa: Validation of the Dutch QOLEB questionnaire and assessment in the Dutch population. Acta Derm Venereol 2014; 94: 442–447.

4. Krause K, Kessler B, Weller K, Veidt J, Chen SC, Martus P, et al. German version of ItchyQoL: validation and initial clinical findings. Acta Derm Venereol 2013; 93: 562–568.

5. Oostveen AM, Jong EM, Evers AW, Donders AR, van de Kerkhof PC, Seyger MM. Reliability, responsiveness and validity of Scalpdex in children with scalp psoriasis: the Dutch study. Acta Derm Venereol 2014; 94: 198–202.

6. Sampogna F, Linder D, Piaserico S, Altomare G, Bortune M, Calzavara-Pinton P, et al. D. Quality of life assessment of patients with scalp dermatitis using the Italian version of the Scalpdex. Acta Derm Venereol 2014; 94: 411–414.