Self-perceived impact of stroke: A longitudinal comparison between one and five years post-stroke
Erik Skoglund, Emma Westerlind, Hanna C. Persson, Katharina S. Sunnerhagen
Department of Clinical Neuroscience, Rehabilitation Medicine, University of Gothenburg, 413 45 Göteborg, Sweden
Preview of fully accepted paper, still not published in any volume
Objective: To investigate different aspects of self-perceived impact of stroke 1 and 5 years after stroke onset, with a focus on self-perceived participation.
Design: Longitudinal cohort study.
Participants: Forty-five persons diagnosed with first-time stroke included in the Stroke Arm Longitudinal study at University of Gothenburg (SALGOT).
Methods: Participants responded to the Stroke Impact Scale, the Impact on Participation and Autonomy and the European Quality of Life 5 dimensions at 1 year and 5 years post-stroke. Wilcoxon signed-rank test was used to check for differences in changes over time between groups.
Results: In general, the perceived consequences of stroke were more severe after 5 years compared with at 1 year. Strength, emotion and participation were the areas most affected, along with restrictions in social life and autonomy indoors. Global disability (mRS) was moderately correlated with quality of life.
Conclusion: The perceived impact of stroke becomes more prominent with time, even for persons with mild-to-moderate stroke. This study highlights the need for long-term support for persons with stroke.
Stroke is a major cause of death and disability world-wide. Persons with stroke experience many types of consequences. This study investigated the self-perceived consequences of stroke at 1 and 5 years post-stroke. Forty-five people participated in face-to-face interviews at 1 year and responded to surveys via regular mail after 5 years. The results show that the perceived impact of stroke becomes more severe with time, even for persons with mild-to-moderate stroke. We conclude that persons with stroke are in need of continuous support.
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