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Content - Volume 48, Issue 2

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EDITORIAL
The SwiSCI Cohort Study
Jerome Bickenbach, Alan Tennant, Gerold Stucki
Abstract is missing (Guest editorial)
Pages: 117-119
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SPECIAL REPORT
Swiss national community survey on functioning after spinal cord injury: Protocol, characteristics of participants and determinants of non-response
Martin W.G. Brinkhof, Christine Fekete, Jonviea D. Chamberlain, Marcel W.M. Post, Armin Gemperli
Objective: To detail the protocol, recruitment, study population, response, and data quality of the first population-based community survey of the Swiss Spinal Cord Injury (SwiSCI) Cohort Study. Design: The survey consisted of 3 successive modules administered between September 2011 and March 2013. The first two modules queried demographics, lesion characteristics and key domains of functioning. ...
Pages: 120-130
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SPECIAL REPORT
Setting up a cohort study of functioning: From classification to measurement
Birgit Prodinger, Carolina S. Ballert, Alarcos Cieza
Objective: Cohort studies are an appropriate method for the collection of population-based longitudinal data to track people’s health and functioning over time. However, describing and understanding functioning in its complexity with all its determinants is one of the biggest challenges faced by clinicians and researchers. Design: This paper focuses on the development of a cohort study on func ...
Pages: 131-140
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ORIGINAL REPORT
Subgroups in epidemiological studies on spinal cord injury: Evaluation of international recommendations in the Swiss Spinal Cord Injury Cohort Study
Timo Hinrichs, Birgit Prodinger, Martin W.G. Brinkhof, Armin Gemperli
Objective: To test subgroups of a community-based sample of individuals with spinal cord injury, categorized by the application of current recommendations by the International Spinal Cord Society. Design: Community survey. Participants: Individuals with traumatic and non-traumatic spinal cord injury residing in Switzerland. Methods: Recommended subgroups of age, gender, years since injury, severi ...
Pages: 141-148
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ORIGINAL REPORT
Metric properties of the Spinal Cord Independence Measure - Self report in a community survey
Birgit Prodinger, Carolina S. Ballert, Martin W.G. Brinkhof, Alan Tennant, Marcel W.M. Post
Objective: The Spinal Cord Independence Measure – Self Report (SCIM-SR) is a self-report instrument for assessing functional independence of persons with spinal cord injury. This study examined the internal construct validity and reliability of the SCIM-SR, when administered in a community survey, using the Rasch measurement model. Methods: Rasch analysis of data from 1,549 individuals with sp ...
Pages: 149-164
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ORIGINAL REPORT
Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland
Luzius Mader, Marcel W.M. Post, Carolina S. Ballert, Gisela Michel, Gerold Stucki, Martin W.G. Brinkhof
Objective: To examine the metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury in Switzerland from a classical and item response theory perspective. Design: Cross-sectional survey. Subjects: Persons with spinal cord injury living in the Swiss community (n = 1,549). Methods: Score distributions a ...
Pages: 165-174
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ORIGINAL REPORT
Rasch analysis of measurement instruments capturing psychological personal factors in persons with spinal cord injury
Claudio Peter, Stefan E. Schulenberg, Erin M. Buchanan, Birgit Prodinger, Szilvia Geyh
Objective: To evaluate the metric properties of distinct measures of psychological personal factors comprising feelings, beliefs, motives, and patterns of experience and behaviour assessed in the Swiss Spinal Cord Injury Cohort Study (SwiSCI), using Rasch methodology. Methods: SwiSCI Pathway 2 is a community-based, nationwide, cross-sectional survey for persons with spinal cord injury (SCI) (n&# ...
Pages: 175-188
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Toward standardized reporting for a cohort study on functioning: The Swiss Spinal Cord Injury Cohort Study
Birgit Prodinger, Carolina S. Ballert, Mirjam Brach, Martin W.G. Brinkhof, Alarcos Cieza, Kerstin Hug, Xavier Jordan, Marcel W.M. Post, Anke Scheel-Sailer, Martin Schubert, Alan Tennant, Gerold Stucki
Objective: Functioning is an important outcome to measure in cohort studies. Clear and operational outcomes are needed to judge the quality of a cohort study. This paper outlines guiding principles for reporting functioning in cohort studies and addresses some outstanding issues. Design: Principles of how to standardize reporting of data from a cohort study on functioning, by deriving scores that ...
Pages: 189-196
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ORIGINAL REPORT
Health conditions in people with spinal cord injury: Contemporary evidence from a population-based community survey in Switzerland
Martin W.G. Brinkhof, Abdul Al-Khodairy, Inge Eriks-Hoogland, Christine Fekete, Timo Hinrichs, Margret Hund-Georgiadis, Sonja Meier, Anke Scheel-Sailer, Martin Schubert, Jan D. Reinhardt
Background: Health conditions in people with spinal cord injury are major determinants for disability, reduced well-being, and mortality. However, population-based evidence on the prevalence and treatment of health conditions in people with spinal cord injury is scarce. Objective: To investigate health conditions in Swiss residents with spinal cord injury, specifically to analyse their prevalence ...
Pages: 197-209
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Perceived impact of environmental barriers on participation among people living with spinal cord injury in Switzerland
Jan D. Reinhardt, Carolina Ballert, Martin W.G. Brinkhof, Marcel W.M. Post
Objective: To describe the impact of environmental barriers perceived by people living with spinal cord injury in the Swiss community and to compare this across subpopulations. Design: Cross-sectional study. Subjects: A total of 1,549 participants in the community survey of the Swiss spinal cord injury Cohort study. Methods: The perceived impact of environmental barriers on participation was m ...
Pages: 210-218
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ORIGINAL REPORT
Describing functioning and health after spinal cord injury in the light of psychological–personal factors
Szilvia Geyh, Simon Kunz, Rachel Müller, Claudio Peter
Objective: To describe and explore functioning and health of persons with spinal cord injury from the perspective of psychological-personal factors in the light of the International Classification of Functioning, Disability and Health (ICF) framework. Methods: Data from 511 participants regarding feelings, thoughts and beliefs, motives, and patterns of experience and behaviour were analysed. Meas ...
Pages: 219-234
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ORIGINAL REPORT
From the person’s perspective: Perceived problems in functioning among individuals with spinal cord injury in Switzerland
Sara Rubinelli, Andrea Glässel, Mirjam Brach
Objective: To report the main problems in functioning cited by people with spinal cord injury in Switzerland. Study design: Post-coding analysis was conducted based on the open-ended question, “What causes you the most problems since your spinal cord injury?” from the Starter Module of the community survey of the Swiss Spinal Cord Injury Cohort Study, administered between September 2011 and M ...
Pages: 235-243
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